Sciensus hosts a Rare Disease Day 2026 webinar

Join Sciensus for a Rare Disease Day 2026 webinar with a live panel discussion bringing together patients, clinicians, industry and advocacy leaders to explore how collaboration is shaping the future of rare disease care.

As a trusted operational partner supporting rare disease patients across Europe, Sciensus brings together diverse voices to share real experiences, clinical insights and industry perspectives on innovation, access, in-home clinical care and patient empowerment. Discover how stronger connections across the rare disease ecosystem can improve outcomes for people living with rare diseases.

Featuring:

Julie Gosper (Managing Director, Rare & Specialty, Sciensus)
Ray Huml (Vice President, Rare Disease Strategy, Sciensus)
Dr Sherif Raouf (Clinical Director, Cancer, Sciensus)
Helen Adshead (Specialist Practice Development Nurse, Sciensus)
Jibreel (Patient living with Morquio)
Cinzia Dorigo (Regional Head of Country Operations Europe, Alexion)
Mark Stone (CEO, FSHD Society)

What we’ll explore

The lived experience of rare disease

Innovation and access to emerging therapies

Care beyond the hospital

The role of advocacy and collaboration

Secure your place: Webinar registration

Thank you for your interest in our webinar series. Whether you’re a patient, caregiver, clinician, or advocate, our team is here to provide the latest insights, resources and connections. Please fill out the form to secure your spot and we’ll send you all the details you need to join the webinar.