Sciensus partners with ITN and Genetic Alliance UK for Rare Disease Day 

Sciensus is dedicated to delivering life-changing medicines across Europe to people living with rare diseases, by using our global network to access patients and provide support and care. 

To mark Rare Disease Day 2024, we’ve partnered with ITN Business and Genetic Alliance UK for a special feature on ‘Rare Conditions: The Stories Behind the Stats‘, an enlightening news program designed to raise awareness about the realities of living with a rare disease. 

This year’s edition shines a light on people living with Progeria, a rare genetic disorder causing rapid ageing in children. 

Guided by ITN’s esteemed host Donna Bernard, we closely follow Sammy Basso’s inspiring journey as he navigates life with Progeria, all while passionately advocating for increased awareness of his condition.  

Mathieu Loiseau, Head of Rare Clinical Operations at Sciensus, provides valuable insights into our commitment to getting life-changing medications to people living with Progeria in Europe whilst enhancing health outcomes through the creation of tailored patient support programs and online communities. 

Watch the full video below and join us in raising awareness for those living with rare diseases.