Why is patient engagement important?
A 2022 survey by the Personalised Care Institute showed that of the 719,137 patients who responded, 44.6% of them wanted more involvement than they currently have in their own healthcare decisions. This figure has grown significantly since the question was first asked in the 2018 survey.
Furthermore, less engaged patients are 3x more likely to have unmet medical needs and 2x as likely to delay getting care.
What is patient engagement?
When patients feel informed, supported, and involved in their treatment, they are more likely to stay on therapy, manage their health effectively, and experience better outcomes. True engagement means more than just taking medicine – it’s about patients understanding their condition, why a treatment matters, and feeling heard throughout their journey. Patients who are engaged with their treatment are also more likely to share valuable feedback and real world experiences with their medicines. By capturing these insights, the impact of these treatments can be shown not just in clinical data, but in the everyday lives of people who rely on them – evidence that resonates with healthcare providers, regulators, payers and pharma alike.
Why patient engagement is important for biopharma companies
Actively engaging patients in their care leads to stronger health outcomes and richer real-world data (RWD). This offers valuable insights into the patient’s lived experience and a drug’s therapeutic benefit in the real world. These insights help shape brand strategies, and strengthen evidence for payers, regulators, and HTAs – while also boosting patient loyalty and brand reputation.
Large-scale patient engagement uncovers patterns in behaviours, symptoms, triggers, and barriers that influence outcomes, such as non-adherence to treatment plans or difficulties with lifestyle changes. With this knowledge, pharma and biotech companies can create tailored interventions, improving the patient experience while driving commercial impact through earlier initiation, strong adherence, and better persistence. Click here to read about Sciensus’ success in maximising patient engagement in oncology.
Importantly, healthcare professionals echo this need: A 2023 study surveyed more than 1,000 health care providers around the world. It showed that patient-centricity is their top consideration when it comes to what they value in a pharma brand. HCPs also said they expect the industry to offer patient support programs and improve the understanding of health information available to patients.
Yet the challenge remains stark: 20-30% of patients never start their prescribed therapy, and half of those who do, begin to drop off within 12 months. Meaningful patient engagement is essential to change these statistics – supporting adherence, reducing discontinuation, and ultimately demonstrating long term value. Pharma continues to rank as one of the lowest NPS industries, at 5.2 out of 100 on average. Elevating patient engagement is therefore not just a responsibility – it’s an opportunity to transform both patient outcomes and industry credibility.
The benefits of patient engagement
1. Improved brand loyalty and reputation
One of the most powerful benefits of patient engagement is that when people feel genuinely supported- particularly through patient support programmes, they are far more likely to stay actively involved with their treatment. These programmes not only provide care and guidance but also build confidence and trust, demonstrating a pharmaceutical company’s commitment to the patient journey. Overtime time, this translates into stronger relationships with both patients and healthcare professionals, enhancing brand reputation and loyalty.
Engaged patients also generate valuable RWD. Insights into treatment initiation, adherence, discontinuation and switching provide pharma and biotech companies with the evidence needed to refine therapies and design more personalised support. This creates a feedback loop where continuous patient input drives better tools, interventions, and services – further strengthening patient trust and satisfaction.
The predictive modelling and data collected allow providers to tailor dosages, frequency and duration of treatments to maximise efficacy and minimise side effects to ensure treatments align with patient needs. When patients are satisfied and actively engaged with a medication, healthcare professionals are more inclined to prescribe it, fostering increased trust and loyalty from the HCP perspective.
At scale, patient engagement bridges information gaps across the healthcare ecosystem – connecting pharma companies, patients, HCPs and payors. This leads to an improved understanding of patients’ conditions, clearer expectations for treatment, and an enhanced overall experience, ultimately contributing to a better quality of life and well-being for patients.
A study published by the National Center for Biotechnology Information (NCBI), underscores the significant impact of patient engagement on various health outcomes, including improved treatment adherence, reduced hospitalisations and adverse events and enhanced patient satisfaction. This was because patients who actively participated in their care were able to monitor their medication more effectively.
A tailored and communicative patient experience is also likely to improve patient retention rates and brand reputation, which in turn will drive new patient acquisition through positive reviews.
2. Strategic market insights
Real-world data empowers pharma and biotech companies to make smarter, more patient-centred decisions that drive engagement, expand market opportunities, and satisfy regulatory requirements. By translating these patient insights into action companies can optimise resources and improve both patient and business outcomes.
Real-world data highlights where patients struggle most – such as treatment initiation, adherence, or persistence – and helps companies design targeted strategies to close these gaps. Support programmes that provide clear guidance on how to take medication, what to expect, and where to find help not only improve engagement but also generate deeper insights into the lived experience of diverse populations. This visibility into underserved groups or regions allows for more tailored communication and interventions that meet real needs. Beyond supporting patients, real-world evidence also fuels commercial growth. Demonstrating treatment benefits in everyday settings strengthens the case for label or indication expansions and supports reimbursement discussions with payers. Regulatory bodies, including the FDA and EMA, increasingly value patient insights in their decision-making and may require longitudinal data from these programs, making it essential for ongoing access and market sustainability
Ultimately, investing in patient engagement and real-world data collection creates a continuous feedback loop: improving patient outcomes, informing clinical and commercial strategy, and building a resilient foundation for long-term growth.
3. Financial gains
Another benefit of patient engagement is that it plays a critical role in improving adherence to prescribed treatments, benefiting both patient health and the financial stability of healthcare systems and pharmaceutical companies. When patients follow their medication regimens, they experience better health outcomes, which reduces the need for additional medical interventions and lowers healthcare costs overall. Enhanced patient adherence can directly impact commercial revenue for pharma companies by helping patients stay on treatment longer.
Adherence is supported through education, reminders and digital tools that keep patients informed and confident in their treatment. These measures help to reduce discontinuation rates, sustaining both patient engagement and revenue.
Improved adherence also brings substantial cost savings for health systems, with non-adherence estimated to cost the EU approximately €125bn each year. By enhancing treatment effectiveness, adherence reduces the need for further interventions, decreasing overall healthcare costs.
Additionally, engaged patients provide valuable real-world data that enables pharma companies to identify adherence barriers, such as forgetfulness or side effects. This data informs the creation of tailored adherence programs, improving health outcomes, reducing hospitalisations and achieving cost savings. Emphasising adherence allows pharma companies to retain patients longer, grow revenue and realise substantial savings, as seen in the NHS, where non-adherence costs are estimated at £930m annually.
4. Market and brand differentiation
In what is an incredibly competitive drug market, patient engagement strategies can be leveraged by pharmaceutical companies to set their products apart and achieve that all-important market differentiation. At the beginning of 2025, there were some 12,700 drugs in the pre-clinical phase of the research and development pipeline with many with similar profiles and treatment efficacy rates. In such a saturated market, patient engagement is becoming a crucial differentiator for both patients and HCPs when evaluating treatment options.
In fact, with over 70% of physicians citing patient engagement as a top priority within their organisations, healthcare providers are increasingly seeking to partner with pharmaceutical and biotech companies that demonstrate a strong commitment to engaging and supporting patients when making purchasing decisions.
A better understanding of patient priorities will also guide more effective marketing efforts, ultimately supporting brand differentiation and recognition.
Tips for increasing patient engagement for biopharma companies
While engaging patients can be challenging, increasing patient engagement will directly benefit them and their treatment journey, which, as a by-product, will also support business goals.
Patient engagement benefits can be optimised by utilising tailored digital tools that empower patients to self-manage their health more effectively. This may be in the form of self-management tools like symptom and medication adherence tracking, standardised questionnaires completed by patients, with examples including EQ-5D and PROMIS scales, but could also be collected by providing patients with wearable devices and mobile apps that can help patients track their physical activity, sleep patterns, heart rate and other health-related data.
The Sciensus Intouch app, for example, helps drive patient engagement by encouraging the report of any medication side effects as they occur. This data can then be presented to clinicians and the patient can talk through exactly what has been happening. It’s also an easy way for patients to stay up to date with their treatment plans which in turn increases patient adherence.
Pharma companies can also develop patient engagement further by practicing communication skills. By actively listening to patient’s needs and problems, solutions can be developed which answer a very specific need. Analysing such feedback can often offer surprising results and open new paths for treatment pathways. By involving patients in this way and giving them the power to take control of their own destinies, pharma companies can quickly build high levels of trust and collaboration with patient groups.
Patient engagement statistics
97% of U.S. patient groups surveyed in 2024 reported having an active relationship with at least one pharmaceutical company. https://www.patient-view.com/wp-content/uploads/2025/05/x-PatientView-Press-Release-Corp-Rep-Pharma-USA-2024-cn-x1-1.pdf
The global patient engagement solutions market reached USD 27.6 billion in 2024 and is projected to grow to USD 86.7 billion by 2030, with a forecast CAGR of 21%. https://www.grandviewresearch.com/industry-analysis/patient-engagement-solutions-market
As of 2022, about 3 in 5 individuals in the U.S. used online patient portals—a 50% increase since 2020. https://www.healthit.gov/data/data-briefs/individuals-access-and-use-patient-portals-and-smartphone-health-apps-2022
Among U.S. adults aged 50–80, 78% report having at least one patient portal account, up from 51% just five years earlier. https://www.healthyagingpoll.org/reports-more/report/use-and-experiences-patient-portals-among-older-adults
The NHS App in the UK had 33.6 million registered users as of December 2023; over 16 million repeat prescriptions and 1.3 million GP appointments were processed via the app in one year. https://www.england.nhs.uk/2023/12/nhs-app-reaches-record-users-on-fifth-anniversary/
Summary
Pharmaceutical and biotech companies that actively invest in patient engagement are leading the way when it comes to defining the future of the industry. By listening to patient views beyond the clinical trial phase, organisations can access critical real-world data (RWD) that informs treatment development, boosts adherence, and improves patient outcomes. Supporting patients is no longer an optional extra, but rather an essential and growing aspect of healthcare operations.
Contact Sciensus today to find out more about how we can help build patient engagement strategies for biopharma companies.